It happens and it happens a lot to everyone.
It is harder when you have another thing loaded on your list, like an SPD child. Sometimes you wonder why this would happen!
Sometimes you think you can't do it all! The OT or going to a dr. is easier, it isn't though.
For those out there that have a hard time and daily challenges, it is going to be okay. I promise it will all work out.
Sometimes you have to alienate yourself from everyone and work on the challenges between your immediate family. Then one at a time let others in slowly.It is hard because you start to feel alone and as if you have no one. I feel like I have no one except my husband at times. Sometimes it is hard to have friends or accept others in your life because they don't understand the situation with your child. They judge or feel your child is a threat. It makes you want to run around with hand outs on SPD.
If you have other children it can even be harder. I know my daughter goes thru a lot because some of the so called friends she has had are not comfortable around her brother because they don't understand.
If you think about it, it is not their fault as a child to understand what SPD is. However, if the parents really want to help and be there then they will help their children understand.
You can make it...That is why I have not had a post in a while. I have been working with Aleq on my own still without going to an OT that wanted to see him only once a week.
Your tools thru the process are your patience, faith, and resources thru books internet.
With these listed you can help your SPD child. He is doing so much better. We are even working on his aggression that he gets when he cannot process what to do.
The bad thing is for some reason my child seems to be the bad one when he melts down because others do not understand and when other children are picking on him. I has happened and it hurts when others make comments that it is my child that is the bad one. Those people should never judge unless you step out of the box and see your children as well. I see so many children with problems like my sons and children that are worse then mine, the parents think it is normal.
So what do you do, you move on to others that will take time to want to help and be there for you. It takes time, I still have not found anyone. God has plans and dont' give up.
You have to take care of home first before you can venture around others.
So when you discover your child has SPD challenges there are important steps to take first:It can work..... I will talk more about how to difuse a situation this week.
1. Have them diagnosed to see which SPD issues he or she has..
2. Check out Out of Sync Child first then Out of Sync Child has Fun
3. If there is any agression or frustration w/ the SPD I totally recommend The Explosive Child
4. Have faith and you can do therapy with him at home...
5. Once you are comfortable with the challenges then you can venture to mingle w/ other family members...
6. Realize that some family members may not agree with you, then you put a smile on your face and say "Sorry, that you don't understand".
7. Once you go around friends, if they don't understand or negative then refer to #6.
8. Keep your patience, loosing patience is the bomb that will explode.
9. Don't worry about anyone except your immediate family. 10 . Make sure if you have siblings to get them active with others that understand as well.
Remember that God will not give you more then you can handle. No matter what an OT says, your child needs help everyday not just once a week. You will have good days and bad days always... Sometimes you will seem like you have to start from the beginning. This is a journey, a long one....I hope everyone that goes thru this will find support. You need a special someone to talk to or vent to.
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